Parkinson's Si Buko Uganda

Parkinson's Si Buko UgandaParkinson's Si Buko UgandaParkinson's Si Buko Uganda

Parkinson's Si Buko Uganda

Parkinson's Si Buko UgandaParkinson's Si Buko UgandaParkinson's Si Buko Uganda
  • Home
  • About Us
  • Our Team
  • Hannington's story
  • a dark side-Lydia's Story
  • Contact Us
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    • Home
    • About Us
    • Our Team
    • Hannington's story
    • a dark side-Lydia's Story
    • Contact Us
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  • Home
  • About Us
  • Our Team
  • Hannington's story
  • a dark side-Lydia's Story
  • Contact Us
  • logos

Our Team and advocates

Sherryl Klingelhofer at World Parkinson Congress Portland Oregon

Sherryl Klingelhofer, President/Founder PSBU & PSBUSA

Kabugo Hannington, Founder/Director of Operations PSBU & PSBUSA

Kabugo Hannington, Founder/Director of Operations PSBU & PSBUSA

A lifelong Oregon resident, Sherryl is certified as master trainer, Qigong instructor, and  specific to PD: Tai Chi Moving for Better Balance and Delay the Disease. She's also an active PD resource on social media. Sherryl has been deeply affected by PD, caring for her father from the time he was diagnosed shortly after his retirement unt

A lifelong Oregon resident, Sherryl is certified as master trainer, Qigong instructor, and  specific to PD: Tai Chi Moving for Better Balance and Delay the Disease. She's also an active PD resource on social media. Sherryl has been deeply affected by PD, caring for her father from the time he was diagnosed shortly after his retirement until his passing.  Sherryl and her father were on the forefront of the "exercise is medicine" approach now common with  Parkinson's  disease.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                  

Kabugo Hannington Tamale, recipient, Outstanding Community Service, 2023 World Parkinson Congress

Kabugo Hannington, Founder/Director of Operations PSBU & PSBUSA

Kabugo Hannington, Founder/Director of Operations PSBU & PSBUSA

Kabugo Hannington, Founder/Director of Operations PSBU & PSBUSA

 Hannington, a father of three and a food scientist by profession, was born and raised in Uganda, Africa, near the capital city of Kampala. His mother suffered from Parkinson's and passed away 11 years ago. Aside from the personal physical and mental challenges  that Parkinson’s imposes on a person, Hannington watched his mother suffer un

 Hannington, a father of three and a food scientist by profession, was born and raised in Uganda, Africa, near the capital city of Kampala. His mother suffered from Parkinson's and passed away 11 years ago. Aside from the personal physical and mental challenges  that Parkinson’s imposes on a person, Hannington watched his mother suffer unnecessarily under the heavy weight of isolation caused by the stigma associated with PD in Uganda. He works tirelessly to spread facts about PD.

He is transitioning into a full-time director for the Si Buko operations.
 

Gavin lives in the Dallas, TX area with his wife and two children. He was diagnosed in 2008.

Gavin Mogan, Executive Director PSBU, Vice President PSBUSA

Gavin Mogan, Executive Director PSBU, Vice President PSBUSA

Gavin Mogan, Executive Director PSBU, Vice President PSBUSA

Gavin lives in the Dallas, TX area with his wife and two children. He was diagnosed with PD in 2008 at age 38. He switched life course in 2018, earned a personal trainer certification, founded Your Move Fitness, LLC, and jumped headfirst into connecting people with PD and appropriate exercise. He remains actively involved in PD causes, es

Gavin lives in the Dallas, TX area with his wife and two children. He was diagnosed with PD in 2008 at age 38. He switched life course in 2018, earned a personal trainer certification, founded Your Move Fitness, LLC, and jumped headfirst into connecting people with PD and appropriate exercise. He remains actively involved in PD causes, especially promoting exercise and lifestyle choices to counter the disease. 

Joanne Love, retired teacher and carepartner to husband Michael with Parkinson's Disease

Joanne Love, Secretary/Treasurer PSBUSA

Gavin Mogan, Executive Director PSBU, Vice President PSBUSA

Gavin Mogan, Executive Director PSBU, Vice President PSBUSA

Joanne lives in, Happy Valley, OR with husband Michael.  Michael has been fighting PD for several years, and recently underwent DBS surgery.  A retired teacher, Joanne has given so much to her community through volunteering, including co-facilitator with Michael for the Tillamook Oregon Parkinson's Resources Support Group.

She is an advoca

Joanne lives in, Happy Valley, OR with husband Michael.  Michael has been fighting PD for several years, and recently underwent DBS surgery.  A retired teacher, Joanne has given so much to her community through volunteering, including co-facilitator with Michael for the Tillamook Oregon Parkinson's Resources Support Group.

She is an advocate for attitude change, insisting that she is a carePARTNER, not a careGIVER!

Advocacy in Action!

thank you to the following

                                 A.C. Woolnaugh, USA       Amanda Roy, DMS, USA                                                                                           Kathrin Wesling, Germany        Karen Raphael, PhD, USA          

 Laura Collins, USA                         Kelly Chadwick ,USA

                            Raman Julke                                            Kathleen Woodie                                                                                  Marcie Salamon, USA                

Al & Miriam Goertzen, USA

Michael & Joanne Love, USA

Neil Benny & Nina Jackson Benny, UK

Kurt Beibuyck, USA

Laura Olmos, Mexico

Maria Orton. USA

Peter Tornquist                         Kathrin Wersing

Susan Grassel                         Laurie Grassel

Patrick Dunn, USA                         George Roche, USA

Parkinson's Africa

Davis Projects for Peace

                           Daniel Raphael, USA                         David Raphael, USA                                      Nathan Lee Ward, USA                     Shawn Evans, USA

Christa Poch-Heiser, USA         Chris Timberlake, USA   

Pills for Parkinson's, Uganda & Rosie Brown UK.

Guyant and Associates, USA

Christine & Madison Dunn, USA

Kelly Chadwick, USA  

Karl Sterling, NeuroMotor Training, LLC

More Info About Us

Sherryl Klingelhofer

Sherryl Klingelhofer

Sherryl Klingelhofer

Sherryl Klingelhofer Parkinson's resource Si Buko

https://yourmove.fitness/blog/f/that-lady-in-the-hats-got-your-back

Kabugo Hannington

Sherryl Klingelhofer

Sherryl Klingelhofer

Kabugo Hannington Tamale director Parkinson's Si Buko Uganda/Parkinson's Si Buko USA

https://yourmove.fitness/blog/f/introducing-the-ugandan-batman-kabugo-hannington

Gavin Mogan

Sherryl Klingelhofer

Gavin Mogan

Gavin Mogan fitness specialist Parkinson's Disease

 https://buff.ly/2zqcGZd 

Make a difference!

for US tax-deductible donations EIN# 87-3908503

would you like your name listed as an advocate?  Donate here ~or~ consider posting this website address on your social media monthly!  Contact us with your name and home country on our contact page!

Pay with PayPal or a debit/credit card

imagine if you will..

donated PD medication - Hannington with client

 

by A.C. Woolnough, author & WPC Ambassador 

Neighbors (for April 2022)


Parkinson’s Si Buko

Twilight Zone, written and narrated by Rod Serling, was a science fiction/morality series on TV (black and white—no color TV back then) first aired in late 1959 and ran for five years. Most people believe the opening monolog was “Imagine if you will…” Like so many famous (but false) quotes, Serling never spoke those words.  Instead, his standard opening was, “There is a fifth dimension beyond that which is known to man. It is a dimension as vast as space and timeless as infinity. It is the middle ground between light and shadow, between science and superstition, and it lies between the pit of man's fears and the summit of his knowledge.".


Imagine if you will a woman in prison. She is a wife and mother. Her crime is so serious her husband takes their children and leaves town to escape the resulting stigma. She is considered so dangerous that when she is fed, a bowl of food is pushed to her using a long stick. Anyone who gets too close may be in danger. She is left alone most of the time—in solitary confinement. Nevertheless, her son sneaks back to visit his mother and watches her suffer and slowly die due to lack of care while imprisoned. Her crime? She has Parkinson’s.


Rod Serling: It may be said with a degree of assurance that not everything that meets the eye is as it appears.


Living in Uganda, Kabugo Hannington’s mother, Milly, was thought to be cursed for practicing witchcraft. Neighbors thought it was contagious and Milly ended up isolated in a virtual prison.  Years later, Hannington googled: What makes people shake? He realized his mother had Parkinson’s—a disease, not witchcraft. Hannington started to put stickers on buses and taxis with information about PD and contact numbers. He received over a hundred calls in the first week from people wanting to know more.  His next step was to set up a workshop. Hoping for about fifty participants, Hannington was excited and overwhelmed when 167 showed up. Starting with the basics, he told people not to shun, avoid, or run away from people with the symptoms of Parkinson’s. “Go see a doctor,” he told them.

 

See a doctor? Good luck with that. There is only one neurologist in Uganda prepared to treat PD patients and little, if any, medication. Knowing of the extremely limited resources, many people would have been overwhelmed. Instead, Hannington took on the role of teacher. He organized (and continues to provide) seminars to teach doctors and nurses about Parkinson’s. At least once a month, Hannington and his organization (Si Buko Parkinson’s--Parkinson’s is not witchcraft) have an activity to promote awareness, advocacy, and knowledge about PD. It may be a fun run, a workshop, a dance, or a public service announcement.


Hannington (with the help of others) is now working to address another major obstacle—lack of available medication. Hannington knows of at least 143 people needing meds, but Parkinson’s Si Buko  can only provide for 26. Fortunately, Hannington is aware of current research that indicates exercise may help slow the progression of PD—he emphasizes exercise in his trainings. It is an amazing effort to do what you can with what you have.


Imagine if you will, the difference one person can make. Now, imagine if you will, what might happen if the world came together to eliminate Parkinson’s.


“We are one world, one Parkinson’s family, we need to be united,” was Hannington’s response when asked to summarize his hopes and dreams. With the help of many other people (especially Sherryl Klingelhofer) Parkinson’s Si Buko is now a 501c3 tax deductible charity (parkinsonssibuko.org) with a three-part mission: dispel myths/inform facts, train health care professionals, and secure access to  resources  for patients. You now know what Hannington is doing to make a difference. What will you do? What difference will you make? 

  • Hannington's story

Parkinson's Si Buko Uganda

Nantabulirwa Goma Division Mukono, PO Box 516 Mukono, Uganda

+256 705 271850

Copyright © 2023 Parkinson's Si Buko Uganda - All Rights Reserved.

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