Parkinson's Si Buko Uganda

Help Remove the Myths

Your support and contributions will enable us to begin to properly care for people with Parkinson's in Uganda.

Parkinson's is misunderstood in many areas of Uganda. It is thought to be a curse brought on by WITCHCRAFT. People with PD are considered untouchable and that the disease is contagious. Outcasts in society, no one wants to be around them...and the tell-tale tremors give away the condition.

PARKINSON'S SI BUKO UGANDA & PARKINSON'S SI BUKO USA

work to bring community awareness, doctor training, physical therapy and medicine to change lives in this, one of the world's poorest countries.

we at PSBU & PSBUSA have no paid staff---all donations go directly to Parkinson Disease Awareness and Resources in Uganda

imagine...

In North America and Europe people with Parkinson's struggle with daily necessities. Cooking meals and doing laundry have changed in the ability to task as one did before the disease.

Imagine, though, having these same challenges in an area where your kitchen and laundry rooms are like these...and you have no access to medication. Just like symptoms of PD, everyone is different, and here is the biggest difference in living with it

We hop in the car to travel to our doctor or hospital appointment. We travel in relative comfort and safety.

Imagine, though, balancing on a motorcycle with your Parkinson's...or having to trek through rocks on a trail to go to reach a medical facility.

Neat and orderly, clean and sanitary, we expect our hospitals to meet certain standards. Doctor exa

We walk into our hospitals the nonchalant expectation of upholstered chairs, efficient staff and sanitary conditions. Doctor exams are in private rooms with modern equipment and the hum of lights or heating /cooling systems.

Imagine, though, overcrowding to the extent you may have to sit on the floor and your exam is done is a room that may have holes in the wall and you get to sit on a wooden bench while other people wander outside your open door.

Uganda as Parkinson's Si Buko Uganda Ltd

Our History

In Uganda, Parkinson's disease is often misunderstood. Parkinson's Si Buko means Parkinson’s is not witchcraft.

Kabugo Hannington's efforts to spread awareness and dispel myths of Parkinson's as Witchcraft or caused by a curse began in 2017. Sherryl Klingelhofer discovered his cause in 2018 and immediately began helping to fund and promote the campaign. Parkinson's Si Buko Uganda Project received its Certificate of Incorporation in Uganda in May 2019.

Demand for information, treatments, and medical care for people with PD has significantly exceeded expectations. This area is vastly underserved, thus, we feel compelled to meet community needs naturally arising as a result of disseminating awareness.

Now with "sister" non profit organization PSBUSA, we can offer even more to this African community.

Gavin Mogan meets the mayor of Mukono with our director Kabugo Hannington Tamale

Our Mission

Parkinson's Si Buko Uganda exists to remove the stigma of Parkinson's disease, educate on symptoms and proper care, and secure access to resources as needs and opportunities arise.

Gavin Morgan, Texas, USA traveled to Uganda for the first African run to raise Awareness for Parkinson’s by our group, Parkinson’s Si Buko! With Uganda Director Hannington and Mukono Mayor

Sherryl Klingelhofer, President/co-founder Parkinson's Si Buko Uganda ~PSBU, Parkinson's Si Buko USA ~PSBUSA (non-profit organization)

Accomplishments

PARKINSON'S DISEASE IN UGANDA MYTHS MISCONCEPTIONS

Parkinson's disease awareness campaigns and dispelling myths through media, community messaging, and taxicab banners

Three awareness funruns for awareness and support, two with Parkinson's Africa as co-sponsor

Health care professional conferences to teach diagnosing PD using Stanford Medical techniques.

Educating the most healthcare workers in PD diagnosis in Uganda

National media coverage in Uganda (see accompanying image)

Secured dedicated hospital space exclusively for Parkinson's disease patient care

Created the Parkinson's Si Buko Community Clinic

Spported Parkinsons clients and families with food during COVID

Joined with other organizations to bring medication and mobility assists to rural clients