PARKINSON'S AS WITCHCRAFT? BRING AWARENESS---DISPEL THE MYTHS
Parkinson's is not Buko (Witchcraft)
Parkinson's is not Buko (Witchcraft)
Can you imagine having a neurological condition and your family won't touch you because they're afraid they will catch your condition? Or that people believe you practice witchcraft because of your condition?
This is what Parkinson's Disease (PD) in Uganda often feels like. We're bringing Parkinson's awareness in Uganda so those suffering with it and their families can reverse their normally rapid declines.
Your support and contributions will enable us to begin to properly care for people with Parkinson's in Uganda.
Parkinson's is misunderstood in many areas of Uganda. It is thought to be a curse brought on by WITCHCRAFT. People with PD are considered untouchable and that the disease is contagious. Outcasts in society, no one wants to be around them...and the tell-tale tremors give away the condition.
PARKINSON'S SI BUKO UGANDA & PARKINSON'S SI BUKO USA
work to bring community awareness, doctor training, physical therapy and medicine to change lives in this, one of the world's poorest countries.
we at PSBU & PSBUSA have no paid staff---all donations go directly to Parkinson Disease Awareness and Resources in Uganda
for US tax-deductible donations
In North America and Europe people with Parkinson's struggle with daily necessities. Cooking meals and doing laundry have changed in the ability to task as one did before the disease.
Imagine, though, having these same challenges in an area where your kitchen and laundry rooms are like these...and you have no access to medication. Just like symptoms of PD, everyone is different, and here is the biggest difference in living with it
We hop in the car to travel to our doctor or hospital appointment. We travel in relative comfort and safety.
Imagine, though, balancing on a motorcycle with your Parkinson's...or having to trek through rocks on a trail to go to reach a medical facility.
We walk into our hospitals the nonchalant expectation of upholstered chairs, efficient staff and sanitary conditions. Doctor exams are in private rooms with modern equipment and the hum of lights or heating /cooling systems.
Imagine, though, overcrowding to the extent you may have to sit on the floor and your exam is done is a room that may have holes in the wall and you get to sit on a wooden bench while other people wander outside your open door.
In Uganda, Parkinson's disease is often misunderstood. Parkinson's Si Buko means Parkinson’s is not witchcraft.
Kabugo Hannington's efforts to spread awareness and dispel myths of Parkinson's as Witchcraft or caused by a curse began in 2017. Sherryl Klingelhofer discovered his cause in 2018 and immediately began helping to fund and promote the campaign. Parkinson's Si Buko Uganda Project received its Certificate of Incorporation in Uganda in May 2019.
Demand for information, treatments, and medical care for people with PD has significantly exceeded expectations. This area is vastly underserved, thus, we feel compelled to meet community needs naturally arising as a result of disseminating awareness.
Now with "sister" non profit organization PSBUSA, we can offer even more to this African community.
Parkinson's Si Buko Uganda exists to remove the stigma of Parkinson's disease, educate on symptoms and proper care, and secure access to resources as needs and opportunities arise.
Gavin Morgan, Texas, USA traveled to Uganda for the first African run to raise Awareness for Parkinson’s by our group, Parkinson’s Si Buko! With Uganda Director Hannington and Mukono Mayor
Sherryl Klingelhofer, President/co-founder Parkinson's Si Buko Uganda ~PSBU, Parkinson's Si Buko USA ~PSBUSA (non-profit organization)
Si Buko Uganda is incorporated in that nation, and registered as a community based organization in Mukono.
We decided to begin our "sister" site in the United States...where we registered in the state of Oregon as a non profit organization ...then with the IRS as a tax-exempt organization.
Donations are now tax-deductible in the US!
Gathering indoors before the run, Kisoro, Uganda
Last year Si Buko and Parkinson's Africa teamed up for the fun run...donors bought Tshirts with their names printed on them so they could "be there"!
Skirts, pants or shorts...they all go well with the Tshirts!
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