PARKINSON'S AS WITCHCRAFT? BRING AWARENESS---DISPEL THE MYTHS
Parkinson's is not Buko (Witchcraft)
donate to PARKINSON'S SI BUKO UGANDA ~PSBU~ PARKINSON'S SI BUKO USA ~PSBUSA~
for US tax-deductible donations
EIN# 87-3908503
imagine...
In North America and Europe people with Parkinson's struggle with daily necessities. Cooking meals and doing laundry have changed in the ability to task as one did before the disease.
Imagine, though, having these same challenges in an area where your kitchen and laundry rooms are like these...and you have no access to medication. Just like symptoms of PD, everyone is different, and here is the biggest difference in living with it
We hop in the car to travel to our doctor or hospital appointment. We travel in relative comfort and safety.
Imagine, though, balancing on a motorcycle with your Parkinson's...or having to trek through rocks on a trail to go to reach a medical facility.
We walk into our hospitals the nonchalant expectation of upholstered chairs, efficient staff and sanitary conditions. Doctor exams are in private rooms with modern equipment and the hum of lights or heating /cooling systems.
Imagine, though, overcrowding to the extent you may have to sit on the floor and your exam is done is a room that may have holes in the wall and you get to sit on a wooden bench while other people wander outside your open door.
Our History
In Uganda, Parkinson's disease is often misunderstood. Parkinson's Si Buko means Parkinson’s is not witchcraft.
Kabugo Hannington's efforts to spread awareness and dispel myths of Parkinson's as Witchcraft or caused by a curse began in 2017. Sherryl Klingelhofer discovered his cause in 2018 and immediately began helping to fund and promote the campaign. Parkinson's Si Buko Uganda Project received its Certificate of Incorporation in Uganda in May 2019.
Demand for information, treatments, and medical care for people with PD has significantly exceeded expectations. This area is vastly underserved, thus, we feel compelled to meet community needs naturally arising as a result of disseminating awareness.
Now with "sister" non profit organization PSBUSA, we can offer even more to this African community.
Our Mission
Parkinson's Si Buko Uganda exists to remove the stigma of Parkinson's disease, educate on symptoms and proper care, and secure access to resources as needs and opportunities arise.
Gavin Morgan, Texas, USA traveled to Uganda for the first African run to raise Awareness for Parkinson’s by our group, Parkinson’s Si Buko! With Uganda Director Hannington and Mukono Mayor
Sherryl Klingelhofer, President/co-founder Parkinson's Si Buko Uganda ~PSBU, Parkinson's Si Buko USA ~PSBUSA (non-profit organization)
Photo Gallery HANDOUTS~~~ONE WAY WE EDUCATE
the si buko usa connecion
Si Buko Uganda is incorporated in that nation, and registered as a community based organization in Mukono.
We decided to begin our "sister" site in the United States...where we registered in the state of Oregon as a non profit organization ...then with the IRS as a tax-exempt organization.
what does that mean for you?
Donations are now tax-deductible in the US!
Accomplishments
Parkinson's disease awareness campaigns and dispelling myths through media, community messaging, and taxicab banners
Three awareness funruns for awareness and support, two with Parkinson's Africa as co-sponsor
Health care professional conferences to teach diagnosing PD using Stanford Medical techniques.
Educating the most healthcare workers in PD diagnosis in Uganda
National media coverage in Uganda (see accompanying image)
Secured dedicated hospital space exclusively for Parkinson's disease patient care
Created the Parkinson's Si Buko Community Clinic
Spported Parkinsons clients and families with food during COVID
Joined with other organizations to bring medication and mobility assists to rural clients
Fun Run Kisoro 2020
Last year Si Buko and Parkinson's Africa teamed up for the fun run...donors bought Tshirts with their names printed on them so they could "be there"!
Skirts, pants or shorts...they all go well with the Tshirts!
